What are PROMs?

PROMs (Patient Reported Outcomes Measures) are usually relatively short and simple standardised questionnaires which can be administered by a healthcare provider. The questionnaires measure the quality and effectiveness of care from the patient’s perspective, before, during, and after treatment.

A PROM is designed to collect information around a given construct and therefore sets of PROMs are required to understand the patient’s perspective across the various dimensions of their care. Common constructs measured by PROMs include, health status, health-related quality of life (HRQoL), QoL, well being, treatment satisfaction, symptoms and functioning.

A number of the available standardized and validated PROMs allow numerical scores to be calculated from the data collected. The resulting numeric scores can be graphed to give care teams a quick overview of a patient’s current condition and comparison with previous results. PROMs data can be compared to normative values to monitor treatment progress or highlight alarming exceptions and deviations from expected results.

How are they developed?

PROMs are developed by multidisciplinary groups of experts across the world assessing various treatments and associated outcomes. Outcomes that matter “most” to patients form the basis of the standardized PROM survey sets. These survey sets are developed in different languages ensuring appropriate context is given to criteria such as cultural, educational and social adaptation.

PROMs diagram